Discussion: The Intravenous Antibiotics
Judy Cohen is 6 years old. Much of her life in the Hasidic Jewish community revolves around the neighborhood synagogue, her extended family, and their Hasidic Jewish community. She lives with her parents and four siblings in a house packed closely against her grandparents’ house next door. The Cohen house is awash in the smells of Mrs. Cohen’s cooking, the sounds of Yiddish prayer and conversation, and the laughter of children. The Cohens speak English fluently, but they prefer to speak their native language. They speak English only when necessary.
Judy’s mother stays home to care for Judy and her four siblings, ages 3, 7, 9, and 10 years.
Judy’s father, Mr. Cohen, works for a family business. When the father is not working, he is usually praying, socializing, and consulting with the rabbi at the synagogue.
When she was 12 months old, Judy was diagnosed with cystic fibrosis (CF), which is an inherited chronic disease that affects the lungs and digestive system. At the time, the medical team that specialized in CF recommended that her siblings have sweat tests, which is the test used for diagnosing cystic fibrosis. Judy’s parents declined because they believed that their children’s health was in God’s hands. Judy’s condition was stable then, and she and her mother attended regularly scheduled appointments with the CF team. Judy’s father, although he was concerned, did not usually come to Judy’s appointments.
When Judy was 18 months old, she went to the clinic with an increased cough and weight loss. The team recommended that she be hospitalized. Judy’s parents initially declined but agreed a week later after her cough had worsened.
At age 4 years, Judy again went into the hospital for pneumonia. Mr. and Mrs. Cohen reluctantly agreed to the hospital admission. When Judy appeared to be responding to the intravenous antibiotics, her parents convinced the medical team to allow Judy to complete her regimen of antibiotics at home
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